Eliza Bahneman’s life changed forever on October 25, 2018, with the arrival of her daughter, Bella. Born a month early, Bella’s entrance was met with surprise and joy, but also unexpected challenges.
As Eliza’s water broke, she rushed to the hospital, unprepared for the journey ahead. Bella’s birth was complicated, requiring a 12-hour labor and eventual NICU admission. Eliza’s excitement turned to concern as medical specialists swarmed her room, whispering words she couldn’t understand.
“Why isn’t anyone congratulating me?” Eliza wondered, surrounded by silence and uncertainty. Her daughter’s arrival, meant to be celebratory, felt somber. Bella’s diagnosis with Treacher Collins syndrome, a rare genetic disorder, shook the family.
Eliza and her husband, Erik, navigated medical complexities, pumping, and round-the-clock care. Eight weeks in the NICU became their new normal. Despite challenges, they found strength in family, friends and medical professionals.
Bella’s journey included multiple surgeries, feeding tubes and therapy sessions. Eliza learned to advocate for her daughter, cherishing moments of connection amidst chaos.
“Life is brittle, lovely and occasionally gloomy,” Eliza reflects. “But I wouldn’t trade this journey for anything.” Today, Bella thrives, surrounded by love and support. Eliza’s story inspires resilience, hope and unwavering maternal love.
“Thank you for sharing your story! Bella is beautiful and special, and so are you and your husband. Stay strong for your girl.”
