Andrea West’s life was turned upside down when she miscarried her first child just eleven weeks into her pregnancy. The grief was overwhelming, but with the support of her loving husband, she slowly began to heal. When she became pregnant again, Andrea was determined to do everything in her power to ensure a healthy pregnancy.
This time around, everything seemed to be going smoothly. Andrea took every precaution, devouring books on pregnancy and making lifestyle changes to support her baby’s growth. But just as she was about to be sent home from the hospital, an ultrasound revealed that she had little to no amniotic fluid left, and labor needed to be induced immediately.
The birth of her son, Adam, was a whirlwind experience. As soon as he was born, Adam was rushed away from his parents, surrounded by a team of medical staff. Andrea’s husband caught a glimpse of their son and uttered the heartbreaking words, “Honey, there’s something wrong with Adam’s leg.”
Andrea was left alone in the ward, unsure of what was happening to her baby. It wasn’t until later that she discovered Adam had been born with Cutis Marmorata Telangiectatica Congenita (CMTC), an extremely rare vascular malformation that affects only a handful of people worldwide.
The diagnosis was devastating, but Andrea and her husband were determined to give Adam the best possible life. They spent countless hours in the NICU, caring for their son and learning how to manage his condition. As Adam grew stronger, it became clear that he was a fighter, and despite the challenges he faced, he was determined to live a happy and healthy life.
Today, Adam is a thriving young boy who loves math, chess, and playing sports. His condition may have made his leg weak, but it has not held him back. Andrea continues to advocate for awareness and support for families affected by rare diseases, inspiring others with her unwavering love and dedication to her son.
Adam’s story is a testament to the power of love and resilience. Despite the unexpected twists and turns, the West family has found happiness and joy in the face of adversity. By sharing their story, they hope to inspire others and make a difference in the lives of those affected by rare diseases.
